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I was hospitalized twice more—weeks I don’t bear in mind, throughout which I misplaced one other ten pounds. First, I had graft-versus-host disease, by which new cells attack old ones, and then, in late September, I was downed by a type of Epstein-Barr virus that blasted my kidneys. Once I obtained house a few weeks later, I had to discover methods to stroll once more and couldn’t pick up my children. My leg muscles wasted and my arms seemed whittled into bone. When the transfusion started, I sneezed twelve instances and threw up. Then I waited—for my blood counts to recover, for my sister’s cells to heal and change my body.
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I had swum a mile within the pool the day before, nine months pregnant. I as soon as swam three miles across the Hudson River—eerily, to raise cash for the Leukemia and Lymphoma Society. I work as an environmental journalist, and for one article I skied the Birkebeiner, a fifty-kilometre cross-county race in Wisconsin, which took me seven and a half hours. I loved to have people over for dinner and to make desserts for my friends’ birthdays.
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My mother and father and my brother and sister, too, have been raising my youngsters and sitting in my varied hospital rooms virtually daily for the final 12 months and a half. They have held my hand unflinchingly whereas I even have suffered, trying to not present their pain and disappointment so as to shield me from it. This has been a fantastic present, even though I feel their ache every single day. For my entire life, I really have tried to be good, to be a good student and an excellent sister and a good daughter, and to guard my mom and never make her upset or offended. Now I have added a model new tragedy to her life, to our family’s life, and there’s nothing I can do to cease it. After the at-home chemo, I was admitted to M.S.K. for a fair stronger dose of poison.
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During the newest scientific trial, my doctor informed me that he could maintain me alive for a 12 months, possibly. My first thought was that my kids, whose faces stay permanently on the within of my eyelids, wouldn’t keep in mind me. My son might have a few reminiscences, but he’ll in all probability start confusing them with pictures he sees or stories he hears.
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